The ‘Promoting Independence In Dementia’ (PRIDE) programme will investigate how people with dementia can keep control of their own lives, stay healthy, contribute to society and feel valued and valuable.
Dementia is an international priority and the PRIDE programme comprises one of six major projects funded by the Economic and Social Research Council (ESRC) to research dementia care in the UK totalling £20m over five years.
PRIDE will be formed of a number of individual programmes that will use existing studies looking at lifestyle and health. It will also conduct interviews with people with dementia and their carers to find out what contributes to helping people stay independent when they experience memory problems.
The project will develop a manual including lifestyle interventions focused on behaviours, attitudes, diet and other health promotors (sleep, blood pressure regulation), suggestions for physical and cognitive activities, and social interactions which can help promote independence and wellbeing in older people with mild to moderate dementia.
The manual will allow for a personalised plan to be developed, implemented and evaluated and led by the dementia patient and their carers.
The PRIDE programme brings together researchers from a number of different universities and organisations including three from within the NCSEM.
Institutions / organisations and researchers
- Professor Martin Orrell – Principal investigator
- Dr Emese Csipke
- Ms Phuong Leung
- Dr Orii McDermott
- Dr Snorri Rafnsson
- Mr James Sinclair
- Ms Charlotte Stoner
- Professor Paul Higgs
- Professor Susan Michie
- Professor Stephen Morris
- Professor Rumana Omar
- Dr Greta Rait
- Dr Aimee Spector
- Professor Andrew Steptoe
University of Sheffield
- Age Concern
- Dementia UK
- Federal University of Santa Catarina (Brazil)
- Maastricht University (Netherlands)
- University of East Anglia
- University of Hull
- The University of Manchester
- University of Sheffield
- Universidade do Sul de Santa Catarina – UNISUL (Brazil)
- The manual for PRIDE was developed in 2016 through the use of focus groups.
- It is designed to be used by dementia advisors with clients (dementia patients and their carers) over three sessions.
- The use of the manual will be piloted in January 2017 and a randomised contro trial will run from September 2017. The manual may be developed as an app to be used online.